International Hypothalamic Hamartoma Awareness Day, also known as International HH Awareness Day, is observed worldwide every September 15. This day was established to educate the public about hypothalamic hamartomas, which are noncancerous tumors located in or near the hypothalamus that can lead to seizures and various health issues. The event aims to support individuals diagnosed with hypothalamic hamartomas and their families, as well as to promote further research into the condition and its treatments. Key symptoms of hypothalamic hamartomas include gelastic seizures, precocious puberty, and cognitive and behavioral challenges. Treatment options may involve surgical intervention, anti-seizure medications, and therapies for mood and behavioral disorders. The observance takes place during International HH Awareness Month, emphasizing the importance of understanding this rare condition, which affects approximately one in 200,000 people.
September 15: Hypothalamic Hamartoma Awareness Day
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