August 19: Malan Syndrome Awareness Day

Malan Syndrome Awareness Day is observed worldwide every August 19 to educate the public about Malan syndrome, a rare genetic disorder characterized by overgrowth, intellectual disability, and behavioral issues. This day was established to support affected families, encourage further research, and promote better access to genetic testing. Malan syndrome is caused by mutations in the NFIX gene and was first reported in 2010. Individuals with the syndrome often exhibit above-average height and weight, craniofacial dysmorphia, and developmental delays. While there is no cure, treatment focuses on managing symptoms through therapies such as speech and occupational therapy. People are encouraged to learn more about the syndrome, share information, and use the hashtag #MalanSyndromeAwarenessDay on social media.

August 19: Malan Syndrome Awareness Day