International SCN8A Awareness Day is observed worldwide every February 9 to highlight a rare genetic disorder linked to the SCN8A gene, which affects only a few hundred individuals globally. The day was established in 2017 by organizations such as Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott, to promote understanding of SCN8A-related disorders and the importance of research and support for affected families. The date commemorates the birthday of Shay Hammer, whose father, Michael Hammer, identified the SCN8A gene following her tragic death in 2011. Activities on this day include educating others about the disorder, donating to relevant organizations, and using the hashtag #scn8aawarenessday on social media. Each year has a unique theme, with past themes emphasizing hope, resilience, and community support.
February 9: SCN8A Awareness Day
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