International Batten Disease Awareness Day is observed worldwide every June 9 to promote understanding of Batten disease, a rare and fatal neurological disorder. This day aims to support affected families and raise funds for research and community initiatives. Batten disease, specifically the juvenile form, is caused by a mutation in the CLN3 gene and leads to progressive nervous system damage, typically manifesting symptoms between the ages of five and ten. Early signs include learning difficulties, coordination issues, and vision problems, with the disease ultimately resulting in cognitive decline and terminal outcomes. Treatment focuses on symptom management, with cerliponase alfa (Brineura) approved for NCL type 2, though no cure exists. Individuals are encouraged to learn about Batten disease, share information, and donate to relevant organizations.